Find & Access Data

Academic Health Center Information Exchange (AHC-IE)

Clinical Data Repository (CDR)

EHRs of more than 5 million patients seen at 8 hospitals and more than 40 clinics. Data is available for hospital visits starting in 2011; for Fairview Health Services clinic visits from 2005; and for University of Minnesota Physicians clinic visits starting from 2011. All start dates are approximate and depend on the date for the adoption of Epic® at each particular site.

Genomics data

Tumor (Somatic) Data and Germline Data

Fairview Tumor Registry

Minnesota Cancer Surveillance System (NAACCR) 

CVIS

Discrete clinical data from Fairview Cath Labs

Optima/PaceArt

Cardiac medical devices interrogation data

Xcelera/Echo

Discrete data from the cardiology image management system

UMP Flowcast

Professional billing data (e.g., diagnoses, procedures, departments) for UMP providers

Community-University Health Care Center (CUHCC)

Dataset for advancing health research that benefits underrepresented communities.

COVID-19 Registry

De-identified electronic medical records of COVID-19 patients as well as those with related conditions and symptoms. COVID-19 registry inclusion criteria.

Masonic Cancer Center Data Registries and Repositories

• Bone Marrow Transplant Research database (BMT): Captures post-transplant outcomes for BMT patients
• Laboratory information management system (LIMS): Subjects’ samples data (number of aliquots, analyte, etc.)
• FreezerWorks: Research samples inventory (freezer name, shelf, rows, box etc.)

BigMouth Network

Oral health records of more than 4.3 million consenting patients from institutions around the country.

OnCore^® enterprise CTMS

Clinical Trial Data

Dental Records

AxiUm dental records from the University of Minnesota School of Dentistry

Minnesota Death Index

Minnesota Department of Health death records issued from 2011 to present for deceased individuals who were born in Minnesota, have died in Minnesota, or have ever had a permanent address in the state.

Merative MarketScan®

The University of Minnesota maintains an institutional license to access Merative MarketScan® Commercial Claims and Encounters and Medicare Supplemental databases for years 2009-2024, with new data added annually. The current license provides access to these data for approved researchers through May 2028.

MarketScan data include medical and pharmacy claims, physician encounters, hospital stays, and insurance enrollment information for a large population of commercially insured patients and Medicare beneficiaries with supplemental health coverage.

Access is available to University of Minnesota faculty, staff, and students within all Health Sciences schools and the Carlson School of Management.

Student-led research is limited to PhD and post-graduate students. Students conducting student-led research must submit their research proposal to Merative for review and approval.

Spatial Data: 

• Patient records are geocoded and enhanced with latitude / longitude / block data elements
• Census data at the block group level from the 2010 Census.
• The Clinical EMR data is geocoded and enhanced latitude / longitude / block data elements

UMLS Data

Standard Terminology and code sets including ICD-9/10, LOINC, NDF-RT, RxNorm, CPT, HCPCS

Other

Datasets obtained by Researchers (e.g., OptumLabs, AHRQ/HCUP, CMS, VA, etc.) 

The CTSI Informatics core participates in several data sharing networks, the goal of which is to facilitate and streamline multi-site clinical research.

Submit a BPIC consultation request to learn how data sharing networks can help your research.

All of Us Research Hub

• One of the largest, most diverse, and most broadly accessible datasets ever assembled.
• Explore aggregate data including genomic variants, survey responses, physical measurements, electronic health record information, and wearables data.

Evolve to Next-Gen Act (ENACT) Network

• Supporting cohort identification across 50 sites (approximately 150M patients).

National Clinical Cohort Collaborative (N3C Long COVID Tenant)

• The N3C Long COVID Tenant is the largest open database in the U.S. for ongoing acute and Long COVID research.
• Note: As of February 2026, N3C is open to currently approved N3C users.

PCORnet and OneFlorida+

• UMN participates in PCORnet, a national resource for large-scale health care data and patient-centered research support, through the OneFlorida+ Clinical Research Network.
• Supports multi-site research, cohort feasibility, and access to standardized EHR, claims, and patient-reported data using the PCORnet Common Data Model.
• UMN researchers can pursue research opportunities using the OneFlorida+ Data Trust or the broader PCORnet network.

TriNetX

• Provides UMN researchers with self-service cohort feasibility and discovery using UMN patients only.
• Supports aggregate cohort counts to help assess study feasibility and identify potential patient populations.
• Provides anonymized cohort search of UMN data to help major Pharmas initiate new trials.

User authorization

Each partner manages its own process for authorizing its users, but the requirements generally include that you are an employee in good standing, have completed HIPAA training, and have signed an attestation form in which you agree to terms for use of the data (e.g. you will only use the data for the purposes specified in the original request form). If you are affiliated with more than one of the partners, your authorization will be via the affiliation most relevant to your data request. It is not your responsibility to ensure your authorization before submitting a request; we will verify your authorization once your request has been submitted.

External collaborators

External collaborators cannot request data themselves, but qualified University-affiliated individuals or departments can be granted access in some cases. To do so, a University member must secure a sponsored guest x500 account for their external collaborator. This is a free service that can be requested via the Office of Information Technology. 

More information for students and employees of UMN

Addressing the following requirements as soon as possible will allow us to deliver data to you more quickly:

HIPAA training

• The University's HIPAA Privacy and Data Security Training program consists of four separate online courses that are part of the "Public Jobs: Private Data" training program.
• If you've completed the training, you do not need to re-take it. A record of all training completed while at the University is available online through the Training History link at the MyU website. You also can contact the Health Information Privacy and Security Office at [email protected].

Attestation form

• You must provide attestation to indicate that you comply with the terms of AHC Information Exchange (IE) data use. To attest, complete this short online form, which will require that you sign in with your university ID (x500). Your attestation will be valid for one year. 

Research

IRB review and approval is required for research falling under the federal definition of human subjects research. IRB approval is required for data requests that require identifiable private information and involve a systematic investigation designed to contribute to generalizable knowledge. 

Visit the U of M's IRB website for more guidance (e.g., Does My Research Need IRB Review?) and instructions for submitting a modification to a protocol or adding personnel.

Activities preparatory to research

Data requests to determine study feasibility or plans for participant recruitment do NOT require IRB review. Participant recruitment itself, however, does need IRB approval. For more information on the disclosure of PHI for activities preparatory to research, see the related Administrative Policy. 

Non-research activities

If you need data in support of clinical operations or quality improvements, you do not need IRB approval however, approval by a Data Steward is required. 

If you would like to send recruitment letters to the patients you have identified with the assistance of  BPIC, we will work with you and Fairview Research Administration (FRA) to coordinate such a mailing.

• When you submit your data request to BPIC, let us know that you plan to send out recruitment letters via Fairview Research Administration.
• Fairview will send out recruitment letters on your behalf provided that your study will occur at Fairview or the University of Minnesota and that you have UMN IRB approval for your study. Read the Fairview Research Recruitment Mailing Guidelines.
• Contact FRA at [email protected] as early as possible to alert them to your plans for a recruitment mailing.

Data request procedures

Data extraction policies:

• AHC-IE Extraction of Identifiable Data
• AHC-IE Extraction of De-identifiable Data

How do I get informatics support?

In addition to providing data, experts from BPIC also can help you work with that data. Contact us at [email protected] if you want to:

• Get help managing the data you received through our data request process.
• Get support for the informatics aspects of your grant applications.
• Learn about informatics experts beyond CTSI.

Consultations are available at no charge to researchers at the University of Minnesota, Fairview, and University of Minnesota Physicians. Request a consultation via our website or by submitting a request form directly.

Training

Contact [email protected] to set up a training session or to learn more about our services, data and tools.

Who do I contact if I need help?

General questions and assistance?

Please contact [email protected]

Forgot your password?

Password assistance for University of Minnesota students and staff, visit IT@UMN

x500:
Use your University of Minnesota x500 username and password to access: i2b2, SHRINE, Duo, Box and vpn

AD Account:
Access the Data Shelter via remote desktop using your AD username and password.